Spaghetti Struggles

“How do I understand him better? Why does he say what he says? Why does he do what he does? Isn’t it common sense? Doesn’t he just know what I need? Why do I have to tell him again? I feel like he doesn’t care.”

Partnerships are complicated. There are no exceptions. Relationships between any two human beings need work, and those that matter the most require a whole lot of hard work. (I dare say that 100% of the time: every day, and all day.) Our family has relied on the two books featured. If you haven’t read them, I highly suggest taking the plunge. They are a quick easy read jam-packed with great practical information.

So what happens when one can’t give 100% and your relationship leans to one side? For whatever reason, the relationship is lopsided. Now what?

These are my favorite verses to fall back on. When I am feeling defeated, alone, and fear is getting the best of me, this is the place where I land:

26 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered.

28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.

Romans 8:26,28

This week my husband was faced with a “plate of spaghetti” and I had an opportunity to see how he was able to tackle it in his dementia state of mind. Women think like spaghetti. They have a thousand things whizzing around and multiple plates to juggle at once. It is how we are hardwired. Men, generally do not multitask as well, and like to handle tasks one waffle square at a time. This is definitely true with the men in my life.

In the past- before dementia, my husband would handle a “plate of spaghetti”- multiple dilemma’s all interwoven, by peeling apart one or two parts of the dish at a time. In fact, I remember him coaching our teenage children through each crisis by giving them a list of 2-3 things to do, with a timeline. He would help them by placing the parts and pieces of the spaghetti dish into waffle squares to be tackled one at a time. He was good at it, and the kids would gravitate toward our calm problem solver.

I, on the other hand, am a practical problem solver and a BIG PICTURE girl. The kids didn’t need my help to see the forest just yet. They just needed to see one tree at a time, and he was their go-to person. In fact, I have often made things worse if I interfere too early.

We have been a team. We compliment each other very much. He has traditionally seen the trees and could get them out of the forest. Then he would tag out and I could help them to process and plan next steps.

So, back to the spaghetti. My brain goes a mile a minute. In fact, on this Saturday, I was awakened at an early hour with a headache, a sore jaw, and thoughts flying through my brain at warped speed.

My husband’s brain does not. This week he sat and stared at his figurative plate of spaghetti, and could not pull out just one part at a time and work through our multilayered challenges. He didn’t even know where to start. The only solution that he could think of wasn’t a possibility. He just sat and cried. He knew I needed him, but he couldn’t help.

So what happens when the relationship is lopsided, despite all the best intentions, and your better half can’t speak your love language?  In Matthew, Jesus says that church members should forgive each other “seventy times seven times” (18:22), a number that symbolizes boundlessness. I take this as a directive for healthy humans. But what if one isn’t? What if he just can’t reciprocate the way I need him to? Now what?

37 Jesus said unto him, Thou shalt love the Lord thy God with all thy heart, and with all thy soul, and with all thy mind.

Matthew 22:37

Whoever does not love does not know God, because God is love.

1 John 4:8

I think the answer is to love and to take what he can give because something is better than nothing. So, to all of you who don’t have an equal partnership, and a plate of spaghetti is just too much to maneuver through, my advice is to take what you can get and accept what he can give. Put on your game face, be the best YOU you can be, and take the blessings, because life is hard and unpredictable. Don’t waste one precious moment thinking about what you don’t have or how your needs aren’t being 100% met. Instead, focus on what you do have. Count your blessings, name them one by one. I do believe that we will be rewarded in the end.

28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.

Romans 8:28

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Figuratively Speaking

Your mind is a garden, your thoughts are the seeds. You can grow flowers or you can grow weeds. I am determined to grow flowers.

We’ve had a really great summer and Fall, a nice long stable stretch. As long as we keep my favorite man’s world predictable, quiet, and with enough projects to keep him busy, he remains happy as a pig in poop.

44284050_10216065718829808_8116275771711946752_nCoffee and candy make him as happy as a kid in a candy store and walks by the ocean keep him happy as a clam at high tide. It takes very little to make his day.

Nap time is most important for him, wrapped like a bug in a rug, he will saw logs for about three hours a day. This gives him enough of a second wind, to stay up until well past my bedtime. He seems to enjoy the quiet time. He thinks it’s the best thing since sliced bread.

He continues to enjoy rewatching the last election from a variety of different networks and is thrilled with the surprise outcome every time. He also follows the local sports teams. He is still quite opinionated, so I say squat when he wants to fill me in about what he watches. Sometimes it takes a month of Sunday’s to get his point across, but if I remain cool as a cucumber when he is wound tighter than a three-day clock, he is happier than a pup with two tails. I remind myself to give eye contact, shut my mouth, nod my head, wait, and listen. That’s all he needs.

imagesMy problem is that I am generally busier than a one-armed paper hanger. I feel like I complete everything by the skin of my teeth and that nothing I do is done up to par. However, I’m learning the value of putting away technology and correcting, giving him my time. Nobody ever lays on their deathbed wishing they spent more time working. My undivided attention makes him happier than a butcher’s dog.

As we prepare for the third snow of the season, we are once again enjoying the pellet stove. Not only does it provide warmth, but it gives him something else to be responsible for. Everyone needs a job, and everyone needs to feel needed. It’s a good thing that he continues to be strong as an ox, and his rotator cuff is allowing him to carry the 40 pound pellets with ease. He really minds the cold, and so the stove is the cat’s meow.

We aren’t quite done winterizing. He still needs to put in the window inserts, the plastic, and the orange stakes out for our neighbors who plow for us. However, he is proud as a peacock that he is still able to do so much to care for our home. God knew that my favorite guy would need plenty of projects.

He can still write, although his handwriting isn’t what it once was and his speech, most of the time, is as plain as day. Sometimes he mixes up words or has a hard time getting his point across, but if we let him “warm up” he will generally make connections.

He putters and is often slower than molasses going uphill, but it makes no difference. There is no fire. Sometimes it is a day or two – and he needs to watch and rewatch YouTube to help him with a project snag, but soon the answer is as plain as day and the snaffoo is working slick as poop through a tin horn.

This year he decided that he didn’t want a vegetable garden or chickens. He has been determined to simplify, which started last summer when our goal was to go through everything we own and thin out. It was a challenge, but he tackled it like a champ, and was happier than a pig in a slop trough when he was able to make more room in the garage.

If he’s having “one of those days” and is meaner than a wet hen, we just remember that there is more than one way to skin a cat. If coffee, candy, and a nap doesn’t do it, we employ the toddler technique. Although our 22 month old granddaughter can run around like a tornado in a trailer park, she can take him from looking like something the cat dragged in, with a personality of a damp dishrag, to a a kid on Christmas morning. Nobody can melt his soul, like his grandbabies.

When the house lacks order and looks like a pig sty, I’m on it like white on rice. We will often clean and straighten together- especially on laundry day, since he has trouble separating the clothes.

If it’s too stimulating, we make like a banana and split, and head off like a herd of turtles to his get-a-way. His mood is never anything that a trip to the coast won’t cure, with a walk and to watch the boats . This makes him as happy as a fox in the hen-house and when he’s happy, I’m happy.

Although poor as church mice because nobody has found that blasted money tree yet, we know that we sow what we reap. Therefore, we want to be transparent, teaching others how to push through life’s challenges. We are not greater than thou. We are just normal humans going through challenges just like everyone else. Instead of feeling sorry for ourselves, we try to meditate on life as a coffee cup, filled to the brim and enjoyed with friends. My husbands favorite reminder to others is that everybody has a story, we only need to listen and observe.

We miss people. Our world has become very small, but we’ve learned that life is like an elevator on its way up, sometimes we have to stop and let some people off. Instead of dwelling on who isn’t around, we are thankful for those that want to be part of our journey, and show us with their actions and prayers.

Life isn’t all peaches and cream. So, as long as we have air to breath, we will remind our family that, “They (you) are our (my) sunshine”, and when they ask if life’s challenges are over; We’ve hit our max; It’s someone else’s turn, we will tell them to dream on Alice, soon they’ll be in Wonderland.

More than anything we just keep reminding ourselves that love is like the wind, you can’t see it, but you can feel it and when life hands you lemons, make lemonade.

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Happy National Coffee Day!

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“Buy one, get one free” brought a smile to my favorite man’s face and a put a twinkle in his eye today. This has brought me joy beyond all measure.

Today has been a foggy day. He has them once in a while. Coffee, a walk, leaf peeping, and a trip to the grocery store made my favorite man’s day. He is now peacefully napping and I hope that he is dreaming of LOVE. I pray that he feels the warm feeling of a family that insists on focusing on what he can do today, what he can remember in the moment, and that his heart and our hearts will forever be entwined.

Coffee is one thing that keeps him with us and makes all the difference. So from our family to yours, Happy National Coffee Day! May it be as good for you as it has been for us.

 

What Keeps Me Awake At Night

I woke up early this morning. I didn’t need to, but after 8 days of school, my body has morphed into school time. School time means that no mater how hard I try, my body refuses to be fooled into going back to sleep.

This morning my mind was filled with goal setting: Marshall Goals, Student Learning Objectives (SLO’s) and what I should make for priorities this year. I don’t know why my brain decided that 6:30 am on a Saturday, was a great time to make such crucial decisions.

In case you have a burning desire to know, our district uses the Kim Marshall Plan which includes an evaluation system based on teacher performance. It is divided into six categories, or domains. The domains include (1) Planning and Preparation for Learning (2) Classroom Management (3) Delivery of Instruction/Monitoring (4) Assessment, and Follow-Up (5) Family and Community Outreach and (6) Professional Responsibilities. Each domain contains 10 standards, in which supervisors rate teachers as Highly Effective, Effective, Partially Effective, or Ineffective for a total of about 60 standards. In theory, each domain, gives teachers and supervisors an opportunity to look at performance and set goals to focus on. Marshall’s rubrics are meant to clearly define criteria to distinguish the Highly Effective teacher from the Ineffective one, and all points in-between. Administrators aim to do 10, 10-minute pop-ins, with a coinciding 10 minute post observation to document progress on a teacher’s chosen goal. Last year, I had 5 classroom observations totaling 50 minutes.

On top of the Marshall goal, teachers are also expected to choose 2 Student Learning Objectives (SLO’s) that are used to target growth and measure student effectiveness. Teachers are expected to make two SMART SLO goals (Specific, Measurable, Actionable, Relevant, and Time Bound) that can measured using data points that are proven reliable.

All lesson plans need to align to Common Core Standards and reporting is done on-line by individual standards. So, not only are teachers being evaluated on an insane amount of standards, but so are children. Most importantly, teacher evaluations are directly linked to the academic success of ALL students.

For both teacher’s and student’s alike, a 4 point scoring system is used. A 4, or Highly Effective status is reserved for truly outstanding performance that meets very demanding criteria very few ratings are in this area. A 3, or Effective status describes solid, expected, professional performance. A 2, or Improvement Necessary indicates that performance has real deficiencies. A 1, or Does Not Meet, is unacceptable and can lead to dismissal unless improved on immediately.

The Marshall Model in particular is not designed to be an “I got ya'” model. However, teachers are perfectionists. They want what constitutes and A and therefore, accept suggestions and generally respond to gentle correction. However, in the world of Marshall Goals, and SLO’s, with 100% of our students expected to meet high demands, many teachers are left feeling deflated.

Fear should not be consuming me at 6:30 am after the second week of school. I know what my strengths are and what my weaknesses are. I know that I am a Highly Effective teacher and nobody can convince me that less than 2 hours of cumulative observations gives my employers a clear picture of what is happening in my classroom and enough information to fairly score me on 60 standards. Although the rubric is designed to create self-reflection, supervisors make the final scoring decisions. This means that my self reflections can be trumped by their perception of what is happening in my classroom. I do have the right to challenge final decisions by showing data. However, they don’t have to provide data that supports their perception of my performance. That is hard for highly sensitive, Type A perfectionists like me.

It used to be that I would leave school for summer vacation feeling like my supervisors noticed and appreciated the dedication and student achievement that was attained. I don’t feel that way any more. Honestly, if I had known 30 years ago what I know now about the evaluation systems for both teachers and students, I think I would have chosen another profession, and that makes me sad, because I truly love what I do and I know in my heart of hearts that I am good at it.

People say that in educations, the pendulum swings from one extreme to another. I wonder when the pendulum is going to swing again, because things need to change. Teachers should not have sleepless nights worrying about end of year evaluation results after the first 2 weeks of school. I’m not sure how, but we need to stand up and demand change. It is time. edweek-pendulum

The Dementia World

I haven’t written about the world of Dementia for a while for a variety of reasons. One, is simply because there has been little to write about. Things have stayed rather stagnant for a while. Another, is because my children don’t like to read about it. It is our reality, but they try not have it be the focus of our existence, and I can appreciate that.

That being said, I share our story for two major purposes: to inform and to educate. I feel strongly that my responsibility is to be transparent in order to keep friends, family, coworkers, and neighbors updated so that they don’t have to ask. There are also followers who either have lived, are living, or will live through dementia in some capacity. The disease doesn’t show favoritism and you never know when it will come knocking at the door of a friend or family member.

A third reason, and the most important one for me, is for therapy. I process by communicating. When life’s circumstances bog me down, writing forces me to organize my thoughts. Strange as it might seem, it works as a sort of detox for my brain.

Today I wish to inform or educate, and at the very least, detox. So, here goes…

Five and a half years ago, I was angry. That was when my 47-year old husband was diagnosed with Frontotemporal Dementia, most likely caused by too many blows to the head. But if it were possible to go back and console my younger self, these are some things that I might say:

Dear Younger Me,

I know that you are running around like an idiot trying to get those 25 things that the support group gave you, completed. They are right, you need to do them and many things are time sensitive. However, you need to know more than anything, that you will have plenty of time to regroup and reset. Time is on your side.

Medical challenges will erupt, and every person’s dementia story sounds different. However, there will be many similarities. Listen and learn from those who have gone before you. I know that makes you angry. You want to know the timetable. You want to know what to expect and when to brace for another pothole, but there is no way to plan. Everyone’s journey is unique. Stop planning.

View his time home as a sweet blessing and his lost job as a gift from above. Call it “Early Retirement” and learn to graciously accept gifts from friends and family. Do not deny them of the blessings that come from being a helpmate to a friend, family, coworker, or neighbor. Choke back your pride. There will be a day when finances will adjust to a “new normal” but it will take time and patience. You will not always live on bread and peanut butter.

Notice the blessings. God knew that your favorite man would need more projects than he could keep up with, That is why he supplied the house on the mountain three years in advance. He also knew that you would need help from well-trained children, who are natural caregivers. He supplied a home that was too big for two, and just right for six, and filled a need for two families. Enjoy the gift of family that provides help and grandchildren that fill you up.

Believe it or not, your relationship will become sweeter than it has ever been. You will feel needed and appreciated because he relies on you so thoroughly. Walks are precious. That is the time that he will open up to you and talk to you about changes that he notices and fears that he has about the future. It is a blessed time to reassure him and provide him with comfort. It is a beautiful gift of time that the Lord has provided.

He knew you needed a small support system that you could call on at any time, knowing that they would be there to hold you up when you won’t have the strength on your own. Don’t dwell on who isn’t there when you feel lonely. Instead, feel thankful for those who have stepped in to help and encourage you.

610546228-612x612The dementia progression will go in steps like a staircase. He will be on one stair for quite some time, before moving to the next landing. It gives you time to recalculate and regroup. Relax. You will catch up.

Some days will be cloudy and some days will be clear. Most days are just fine. He won’t be able to differentiate between a cloudy and clear day, so you will have to do it for him. He will be tired, confused, frustrated because he can’t do something he knows he should know how to do, or angry because he “did something stupid”. Just reassure him, and keep things light. You are his person and if he sees you upset, he won’t know what to do about it and his agitation will increase. Save it for the closet or the shower.

He will be quieter. Be prepared to do projects and errands alone. You will have to keep him safe, take over the driving, manage the finances, and monitor the medications. However, the good news is that he will still be an active participant in the family. He will still cook, mow the lawn, do laundry (after someone else separates it), clean, and make minor renovations 5 1/2 years after the diagnosis. Regression isn’t immediate, so relax. Just watch from afar to be sure that he stays safe.

He will be tired, have a headache nearly every day, and will be sore from a torn rotator cuff and an arthritis filled body. He will lose his desire to eat most meals. However, he will be drawn to sweets. Foods will taste bland to him, so they won’t be as enjoyable. He will be thrilled with Dunkin Donut’s coffee, soda, and sweet treats like ice cream, candy, and cookies. It will make you so happy to see him content.

You will have to worry about highly stimulating situations. He will no longer want to go to church, or crowded places, especially where people might know him, and he doesn’t know them. Even familiar places like the family farm will be a scary place. He will be happiest at home, riding in the car, or down by the water. The ocean brings him peace. He will love to watch the boats and the tide slapping on the rocks.

After 5 1/2 years, he will still be able to read, and retain what he reads if it is highly interesting. He will still be interested in politics, history, and the most recent election. It will bring him great joy to re-watch the surprise ending! He will enjoy watching Big Brother, Survivor, and 48 hours with your middle child via FaceTime and Messenger every Saturday night.

His children and grandchildren will continue to bring him the most joy. Although highly stimulating when all together, there will be nothing that makes him happier. Plan to have him respond much the way an autistic child would when he’s had enough. He will shake his hands, stare, shiver, rock, yell out, or bolt. Occasionally he might surprise you and rise to the occasion, and crash later. Most importantly, he will be looking for you. You are his person. Be there. Hold his hand, whisper in his ear, let him rub your arm raw, and take him for a walk. He needs you and it will make you feel so good to be his lifeline.

More than anything, live for the day. Stop planning. Don’t plan anything for more than 4-6 weeks out. Think back to when the children were little. Make tentative plans based on how he is doing at that moment on that particular day. Dementia makes no sense. Some days are good. Some days are not so good. Some things are forgotten forever. Some things come back after a period of time.

Celebrate each day as a gift. Stop worrying about the future. When it’s time, God will reveal what the next steps are. It sounds trite, but you really have to just live in the moment. Most importantly, stop holding your breath. Don’t waste one precious moment. You don’t want any regrets in the end.

Don’t doubt yourself. Your journey is your journey. It isn’t going to look like everyone else’s. You and the kids are going to be alright. He has taught you everything you need to know to keep going. When the time comes, and the Lord takes him home, be assured that you will one day be reunited. A physical death is not the end of your story. So relax. Enjoy the moment, seek joy, find strength and peace. You will be okay.

With love,

Older, Wiser Me.

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MYOB

As a child my mother would constantly remind us to MYOB (Mind Your Own Business). To be honest, it was often HER fault that I was, and continue to feel, in charge of everyone. As a young child, I had to watch over my siblings and our house pets. When we moved to the farm, I was in charge of animals- lots of them. We had huge responsibilities in the barn, at school, and at home. Then I married, had children of my own, tended to a classroom, gained in-laws, and grandchildren. Now, my aging parents and sick husband pull and tug at my heartstrings. It has always been my business to mind everyone else’s, and it has become my natural tendency to worry and to protect.

One of my coping mechanisms is to be a long-range planner. I look at the forest and then the trees. I am a big picture kind of gal, and some find that rather irritating- namely my husband. From the beginning, he would spontaneously decide to do something and go at things willy-nilly. Sometimes it worked out well, sometimes not so much.

Wisdom comes with age and many failures, and I am not lacking on those. However, I am trying to use my new-found knowledge to impart on the next generation without overstepping- a hard thing to do.

This summer, I have done two studies: Women Who Made A Difference, by Martha Tyler and How’s Your Attitude? by Juanita Purcell and it “shocks me” how the studies have aligned to much of what I needed to hear and to the summer services at church. So, I thought I’d share a few of my “Ah Ha’s”.

My mother, a very wise woman, always says that if I concentrate on doing the right thing, I don’t have to worry about doing the wrong thing. So, how do I know what is right?

My lessons have encouraged me to realize that I need to:

  • cling to my faith and to be desperate for a relationship with the Almighty.
  • sympathize with and comfort those that I love.
  • have power under control and to absorb adversity and criticism without lashing back.
  • seek God’s word so that I can have permanent joy that is not affected by life’s up’s and downs.
  • show mercy to those that hurt us and forgive them even if they don’t ask.
  • keep my mind pure and my heart uncontaminated.
  • be quick to listen, and slow to speak or get angry.

You may recognize these as the beatitudes: a list of Godly attitudes that lead to true happiness and right behavior. I have a choice every day regarding the attitude that I am going to embrace for the day. In order to stay sane, I need to focus on what I can do and stop worrying about what I have no control over. I can’t always control my circumstances, but I can control how I respond to them.

I think I can make a difference, just like some of the women that I have read about this summer. It has become clear that my job is to demonstrate a spirit of humility so that my heart attitude is right. What I do and what I say matters every minute of every day becasuse people are watching me.

As I re-read the stories about Shadrach, Meshach, and Abednego, as well as Daniel, I have been reminded that with God all things are possible. If I am truly putting my trust in Him, I can be fearless.

So today, I will MYOB and let God be God.

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All Is Well, Mostly

Every summer I make it a priority to get healthy mind, spirit, and body. My husband and children can attest to it. At the end of each school year, I am exhausted to the core, and it takes the better part of the summer to work up enough courage to go another round. Don’t get me wrong, I love what I do. It’s just hard on so many levels, and by mid-June there is legitimately nothing left to give.

The first thing I do is sleep. I sleep long and hard. I nap, go to bed early, lay out in the sun soaking up some vitamin D in the sleep zone. It takes me the better part of three weeks to feel human again. It is during this time that I concentrate on exercise, eating right, and doing my daily devotions. By the end of July, I generally start gaining courage. I begin looking at the “Back To School” sections of the department stores, thinking about how I am going to tweak my lesson plans, and what subtle changes I am going to make in my classroom so that I can still find things when I need them.

Some people change their rooms around yearly and I always marvel at that. I’d seriously never be able to find a thing! My room goes back up each year the way I had it the year before with few variations. In fact, I have a pretty good idea that the class I had 8 years ago could walk in my room and find everything that was needed. Actually this makes me smile and brings me comfort. I love my classroom. It is my home away from home.

Change. I hate change. But like all things in life, things move- sometimes backward, sometimes forward. This year will be no different. I am facing a new math program that I am not looking forward to implementing, but I am trying to keep an open mind. I’m going to work a little harder at diversifying, which I think is funny- because it’s just a fancy way of saying “tracking”, which was the practice when I was in school. Teaching has a way of coming around full circle. They just give it a new name.

Change is an ugly word. I know that some people think that it is progressive and healthy, but I hate it. If it were up to me, I’d never change a thing. But my fighting it, isn’t going to stop it. Relationships change, professions change, finances change, and health changes. Maybe change is so difficult because it is unpredictable, and risky: things could get better or they could get worse. For me- I like the conservative route.

Maybe that is why I cling to my faith so much. My belief system is the one thing that remains constant and the promises are the same yesterday, today, and tomorrow. Sometimes I wonder, “What if I’m all wrong?” But the answer to myself is always, “In the end, I’ll have lost nothing but I have so much to gain.” If my faith has made me a more caring individual with high value systems and even higher standards for myself, then I have lost nothing.

This summer I have been fluctuating between two different studies: one about my attitude and one about important women in the bible who made a difference. I’ve come to a few conclusions. One, how successful the inevitable change is, depends on my attitude. I could go into it kicking and screaming, or I could embrace it as an opportunity to learn and grow- even if what I learn is what doesn’t work. Two, don’t be too critical of other people’s mistakes. Most likely you have or will make a similar one yourself and you don’t want others being too hard on you. Three, sometimes you need to hear that you do something right- even if it is your own self talk. I know where my shortcomings are. I don’t need anyone to point them out to me. What I do need is validation and encouragement. Four, I need to practice meekness. Meekness isn’t weakness. It is the use of controlled, well thought out responses full of wisdom.

So, as I amble on through the “stuff” of life, I am formulating a plan so that I can endure the race of the next year with stamina and class. I am going to gravitate toward those people who truly lift me up and encourage me to be the best me I can be. I am going to give change an honest chance and learn from it regardless of the outcome. I am going to encourage others, with the hope that they will reciprocate, and be okay if they do not. Finally, I am going to be slower to respond so that what comes out of my mouth is controlled and well thought out.

Ultimately, there are always going to be people out there who are going to criticise and notice all of the shortfalls. It is the way of the world. It is my job to keep looking up, keep thinking positively, and surround myself with positive influences. I will keep putting one foot in front of the other by the grace of God, trusting that He will hold me and my family firmly in the palm of HIs great hand.

In this life full of challenges and changes, I’ll take mostly all right.